doctors, bosses, and normal

I’ve talked before about Monster’s disability. He was born with a hearing loss and has hearing aids. Since his diagnosis nearly 6 years ago, my life has been a whirlwind of appointments : Doctors, speech therapy, counsellors, ENT, audiology…. the list goes on and on.
For a time, there was an appointment every other week. Sometimes 2 or 3. It was exhausting – not only physically, but emotionally and career-wise, too. I am lucky to have a job that my supervisor is very understanding of motherhood and the time it requires, allows me to make-up time and switch shifts, but I wasn’t always so lucky. When all of the appointments started, my manager at the time hated me. She looked for any opportunity to drag me in her office and reprimand berate me. If I hadn’t needed the job so badly, I would have told her where she could put her job… alas – a single mom needs money to survive.
I thank God for my current Supervisor and Manager… after that experience, I will always appreciate a “boss” that doesn’t hold my child against me.

Monster has struggled with fluid in his ears for a few years now. He hasn’t had a reliable hearing test in over 2 years because there was constantly fluid or congestion.

He had tubes put in 2 ears ago, which helped for a while, but as soon as they grew over, the fluid came back. The doctors would not re-do the tubes, because it wasn’t “consistent” fluid. Every 3 months Monster would go to the Audiologist. Every 3 months she would shake her head and mutter under her breath because he would have congestion in one ear which makes it difficult for her to get an accurate reading on whether his hearing has remained at the level it was, or degenerated. Why wouldn’t they re-do the tubes? Every 3 months, the fluid was in a different ear. Frustrating.

Last week, Monster had an appointment with his Ear, Nose and Throat doctor. This is the appointment where the doctor looks in his ears, comments on the amount of fluid he has, then books an appointment to follow-up in 3 months because “if the fluid is still there, we will definitely have to re-do the tubes.”

But in 3 months, the fluid will be on the other ear and I’ll get the same speech.

Yeah. Wait for it.

“Right on – no fluid”

Huh?

I look over at Monster lying on the examination table, smiling and giving this new E.N.T., who I now LOVE, a big smile and a high five.

“None?” I ask him, hesitant because he is new, after all – and looks like he’s about 25.

“None. Been a while since you’ve heard that?” he asked with a big smile. Even the nurse looked pleased. Of course that could be because Monster was flirting with her for the whole appointment. He has a way, that little one. The force is strong in him. But THAT’s a whole other post.

Then we got whisked away to do hearing tests while we had a chance for accurate results. And they were a word I haven’t heard in some time : Normal. Well, normal for Monster anyway. While his hearing hasn’t gotten any better (and never will) it hasn’t gotten any worse in the nearly 6 years since he was born. This is just the sort of good news that I needed.

Normal.

Not a word often heard in our home. And definitely not used to describe any of us…

Mommyhood Confession | Monster’s 30 questions

Why should be banned and classified as a bad word. I understand that it is a learning tool, but seriously – when is it enough?!

Monster is my “why” child. ย He’ll ask why to everything, and when you give him an answer, he’ll ask why to that… this cycle can continue until finally you have to end it with “I don’t know, Monster… ask Mr P.” (his teacher)

Have you ever seen the movie Uncle Buck? Monster is Miles… especially in the scene where John Candy gets asked question after question- every time he answers, it is followed up by “How come?” – this is Monster.
If you haven’t seen this yet, you have to watch it!!!

I thought I’d turn the tables and ask him the questions… only I didn’t follow every single one up with “why?” He felt pretty important that Mommy was interviewing him. ๐Ÿ™‚

1.What is your favourite colour? Red is nice
2.What is your favourite toy? My ‘Angry Birds’ Pig – he’s the best.
3.What is your favourite fruit? Apple. Grapes? Wait, no. Definitely Apple.
4.What is your favourite tv show? Diego I think – maybe Star Wars too.
5.What is your favourite thing to eat for lunch? Cheez Whiz and crackers – it’s really good for you – like healthy mom.
6.What is your favourite outfit? my undershirt ???
7.What is your favourite game? Lightning McQueen on my V-Reader
8.What is your favourite snack? Peanut butter and banana roll-ups that F makes (F is Hubby).
9.What is your favourite animal? kittie cats – especially Nemo and Marlin at Gramma & Grampa’s house.
10.What is your favourite song? sungJust the way you are (yes, my son loves Bruno Mars)
11.What is your favourite book? I Knew You Could can we read it next?
12.Who is your best friend? Brady – cuz he plays with me. And Vanessa…but she’s my girlfriend.
13.What is your favourite cereal? Cheerios (is there any other)
14.What is your favourite thing to do outside? Play in the snow making snowforts.
15.What is your favourite drink? Milkshakes – pink ones – yum.
16.What is your favourite holiday? Valentines day
17.What do you like to take to bed with you at night? Deedle (as he snuggles in close)
18.What is your favourite thing to eat for breakfast? I like your eggies, but I like your Ham and Egg Muffins better.
19.What do you want for dinner on your birthday? French Fries and chicken nuggets cuz I like them the best… remember F made them a long time ago?
20.What do you want to be when you grow up? I will go to work and let you stay home (cute!) I’ll be a scientist making potions.
21.Where is your favourite place to go? Sarah’s house cuz it’s the best – I get to watch movies there, bring my own drink there… play with C and give Sarah a hug when I go.
22.What is your favourite thing to do in the whole wide world? Give hugs and kisses to Mommy and F and Daddy and Gramma and Grampa and Peanut and Speedy and….. (naming everyone in the family)
23.What is your favourite letter? A cuz you can spell alphabet with it.
24.What is your lucky number? 1 cuz it’s easy to count.
25.What animal do you like to see when you go to the zoo? A zebra because they’re black and white and sometimes they can do tricks like Marty on Madagascar. It’s pretty funny mom.
26.What is your favourite book to read at night? The train one (see # 11)
27.What colour are your eyes? blue… no GREEN. right?
28.What is your favourite thing to do with Mommy on the weekend? Give you hugs and kisses and go to the spiderweb park on our bikes.
29.What do you like most about Peanut? He lets me play with his remote control helicopter.
30.What do you like most about Speedy? He plays tag with me.
Anything else you want to say?
“Yeah, F reads great stories. I love you Mom. Past Heaven and the North Pole and China and the Arctic and past that and past that and past that and even past CHINA.”

I love you too, Monster. ๐Ÿ™‚

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Sunday Smilemaker | skating

I’ve been trying to get Monster to skate. All last winter, he refused, saying he just wanted to walk.

If you’ve been reading me for any length of time, you’ll know that “can’t” is a bad word in my house.

We tried bob skates… no luck.
So this year, I didn’t even make a deal out of it, I just put the skates on him and said “walk around the basement.”

So he did.

And he was thrilled that he could walk around and not fall over.

So we went to the rink.

He did really, really well. I taught him to “shuffle” and then as he learned to get going forward, how to snowplow to slow down… he’s so proud of himself.

Great job, my littlest man. xo

Sunday Smilemaker(s)

I have more than one smilemaker today.
My 3 oldest friends and I get together every year with our children and have our own Christmas for them.
This year, the party was hosted at our house. With 8 children under 8 (most of them under 5), there was no shortage of shouts, squeals, crying, laughing, and excitement.

As the evening wound down, everyone gathered up their children and said their goodbyes. As I closed the door behind my friend B, with her little man C (you can find him here… or here), I realized that we don’t do this nearly enough.

Why only once a year?

We’ve been best friends since we were kids. We’ve seen each other through heartbreaks, weddings, divorce, births, deaths and multiple trips to the hospital for any number of injuries and illnesses.

These are the women I trust with my life, and who I am proud to be friends with.

Most of the time ๐Ÿ˜‰

Here are some fun shots from our afternoon together.

Monster got an R/C truck for his gift. ย This made him “sooooooo happy!!”

He spent the next 20 minutes racing it back and forth from the living room to the entryway, all the while trying to keep the remote out of the quick hands of little BusyBoy.

The first moment he set it down and turned his back…..

Muuahahahaha

Wordless Wednesday | the new cats

Please don’t call the humane society on us.

My father “rescued” some barn cats for the boys to have as pets…

This is Nemo.
He has a brother named Marlin who is a solid steel gray.

Yes the 5 year old named them after his favourite movie.

Marlin was smart and wouldn’t let Monster near him. Just circled the perimeter, waiting for us to give him food.

My guess is that they’ll eventually cave in and forget how to use their legs as they will be carried from point A to point B.

The morale of the story is :

I have discovered that if I let my children tell their grandparents how horrid we are for not having a pet, they will get one and keep it at their house!! YAY!